Oh, wondertwins. I love you. I'm just not quite sure what to do about you.
This has been the story of our lives together, really. Because I loved you from the very beginning, but our story has always been colored with a little bit of the unknown, a little (okay A LOT) of fear, a lot of hope, a lot of joy, a lot of sorrow. And mostly, I'm never quite sure which one it's supposed to be, because I am human and I have a very hard time understanding that any of those emotions can co-exist in the exact same moment. Which is actually turning into years.
You were conceived in a petri dish, so there was NEVER a second of your lives that didn't carry risk. This is absolutely true of every baby that is ever conceived, but most parents don't think of procreation in terms of odds and egg quality and the thousands of dollars it takes to employ a mad scientist (aka, a fertility specialist). We had a less than 30% chance of conceiving ONE of you, and a less than 7% chance that you would be triplets.
We were hopeful, but EXTREMELY guarded in our expectations. Enter our entire lives, thus far, together.
When my water broke with your brother Caleb, you chances for survival went WAY down. You all survived. But we lived and breathed based upon my temperature at any given hour (fever signaled infection), the number of centimeters of water in Caleb's ruptured bag, the number of contractions I had in an hour, the number of weeks we sssssssssslowly counted down with you still tucked oddly between my throat and my intestines. Twenty weeks, twenty-one, twenty two. We were still hopefully GUARDED.
Twenty-five weeks, and there you were. We met in the presence of at least 40 medical professionals. We were never alone, not for 5 whole months. If we were alone, you were not going to live.
Caleb died, and we had two horribly, painfully sick babies. Any more weakness in your lungs, any infections, and it would have been over. For weeks, the NICU was at the maximum of what it could do for you. They were IMPROVISING ways to keep you alive. You were an episode of Grey's Anatomy. Scratch that, you were an entire season.
I suppose I have always prepared for the extremes with you two. Life or death.
And I am having a wee bit of trouble with the middle ground.
Your life since the NICU has been pretty...steady. There was a small need for oxygen tanks, but you quickly outgrew them. There was the whole feeding tube debacle, which eventually, we got rid of. You crawled. You walked. You talked. You appeared to understand us. You had delays, but you made them up. You were amazing. Best case scenarios.
You started kindergarten on par with your peers. No therapy, no services, no safety net. We are trained not to be guarded, but to expect that you are ready. And I *think* I confused "ready" with never-going-to-struggle-ever. Because you're struggling, wondertwins. And I forget how to live on that end of the spectrum.
Here's the thing--the extremes, the life or death's--they require very little of me. They mean that I take a backseat to the professionals, or I cruise in auto-pilot because everything is hunky-dory. It means completely relying on the grace of God, or upon my (or your) ability to go it alone.
ALL or NOTHING.
I don't do the middle very well. You know, the living that comes between tragedy and perfection. Maybe you've realized this?
I am working to figure out how we are going to survive school together. Because you need my help, but I don't know how to give it to you. We are riding this gray wave, somewhere in the middle of everything, and I can see we are going to be here for a while. And I am trapped between expecting that you are never going to learn to read, and that you are going to complete your first novel tomorrow. And that makes me SCHIZOPHRENIC, and for that I am deeply, deeply sorry.
Kindergarten is damn hard. And now that we are struggling here, I have am having a few war-like flashbacks of the time that G spent here. TRYING to learn the English language that we all know and love, but breaking it down by letters that LOTS OF TIMES sound nothing like they are supposed to? I don't know why e's are sometimes silent, and sometimes not. I'm not sure what the difference is between a "c" and a "k". And as hard as it is for you to grasp it, please know that it is just as hard for me to explain it. Which is quite a kick in the ego, when you are 34, an English major and consider yourself a writer.
I want to be different. Better. More patient with you. Know what you need, all the time. And I want to be that mother....right.....NOW.
I don't want to have to work on it, or pray about it, or struggle with it. All or nothing. Life or death.
I am fairly certain that God is
Wondertwins, I am working on it. But this is likely the sort of thing that takes an entire lifetime, and so *hopefully* I will be less of a mess when it comes to my grandchildren.
I love you both. You are miracles, with or without a grasp on the phonetic language. And one day, when the world is run by computers and we are slaves to our iphones and the computer chips they are undoubtedly going to implant in our brains, we will all look back on this and laugh.

9 comments:
You've been an advocate for these sweet babes for the last six years and you've done great. You might not be comfortable but you do know your kids that I know for sure! And one of your bff happens to be a special Ed teacher so maybe just maybe she could be a support for you. You are a great mom and you love your kids well. so please don't doubt your ability to support them.
Improvising...just do it...very little about life is by the book!
Wondertwins for President!
A word from your ex nanny...
All those decisions you made that you were "supposed to" make, with their feeding tubes/oxygen tanks/meals/bed times/rules/therapy sessions/activities/etc.... those were all good decisions that you chose to make. Not obvious or easy, and certainly not assumed.
You, like your kids (and all of us), are perfect in your imperfections. Thank goodness for that, because can you imagine being a kid who struggled and feeling like you had the PERFECT mom?? A mom that always got it all right and never had to struggle to figure anything out? That would totally suck. I mean... really suck. I'm thankful that you are down-to-earth enough to be real and to struggle. That's what your kids need to see. You struggle and work through it... so that they know they can do it too.
They will figure it out... whatever "it" God has for them, and there is no doubt in my mind that you are the EXACT right woman to mother those twins.
Girl, you are awesome.
Kindergarten is a brutal slap in the face after the relative ease of preschool and toddler-dom and infancy. I'm in round 2 of it also, as you know, and I'm having all these crazy realizations about how I can't actually be friends with their teachers until the school year is over, and how I need to go against every instinct I have (which say LISTEN TO THE EXPERTS!!!!!) because, even though the thought makes my stomach queasy, if my kids are at all atypical I might in fact *be* the expert.
It gives me great comfort when people comment on my blog about how many kids (boys in particular) can't *get* reading until they're 8 years old. And it's awesome when kids can read at 3 or 5 or 6, but that doesn't mean anything about *my* kids except that mine were working on different parts of their brains during the limited time they've had on earth.
Another realization I've had, as another English major/writer: I have always been able to read. I was one of those kids who was reading fluently by age 4, and maybe before. And that is probably why I have NO IDEA how to teach my kids to read.
My final realization is that we need an online Kindergarten Support Group.
This post is so beautiful and I agree with what everyone else has said -- you are THE LADY to make the tough decisions for them. Trust yourself, and trust that God knew you and knew the kids he gave you, and made a good match.
great post. just know you're doing better than you think you are. you're the best mom for them, even when you think you're not!
xx
Sara
And WE agree with all of these.
Love Mimi and Landad ><>
Beautiful Blog. So hard to be a mom, but I am sure you are a great one!
Beautiful sentiments. Well spoken, honest and raw. Loved it.
Oh how I've missed reading you! Sorry I've been MIA for the last few months. We need to hang out soon. And kindergarten IS damn hard. We're getting our IEP this week, I think.
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